Medicaid beneficiaries in poor expansion regions worry about coverage loss under Trump repeal and replace plan

Kentucky Governor Matt Bevin dismantled the state-run health insurance exchange, Kynect, and has threatened to roll back Medicaid expansion if the Obama administration doesn’t allow him to make major changes.

MANCHESTER, Ky. -- For Freida Lockaby, an unemployed 56-year-old woman who lives with her dog in an aging mobile home in one America's poorest places, the Affordable Care Act was life altering.

The law allowed Kentucky to expand Medicaid in 2014 and made Lockaby -- along with 440,000 other low-income state residents -- newly eligible for free health care under the state-federal insurance program. Enrollment gave Lockaby her first health insurance in 11 years.

"It's been a godsend to me," said the former Ohio school custodian who moved to Kentucky a decade ago.

Lockaby finally got treated for a thyroid disorder that had left her so exhausted, she'd almost taken root in her living room chair. Cataract surgery let her see clearly again. A carpal tunnel operation on her left hand eased her pain and made her sleep better. Daily medications brought her high blood pressure and elevated cholesterol level under control.

But Lockaby is worried her good fortune could soon end. Her future access to health care now hinges on a controversial proposal to revamp the program that her state's Republican governor has submitted to the Obama administration.

[Also: Fate of Medicaid expansion is top of mind for providers in Trump healthcare plan, experts say]

Gov. Matt Bevin, who was elected in 2015, has argued Kentucky cannot afford Medicaid in its current form.  Obamacare permitted states to use federal funds to broaden Medicaid eligibility to all adults with incomes at or below 138 percent of the federal poverty level, now $11,880 for individuals. Kentucky's enrollment has doubled since late 2013 and today almost a third of its residents are in the program. That's led to the one of the sharpest drops in any state's uninsured rate, to 7.5 percent in 2015 from 20 percent two years earlier.

Kentucky's achievement owed much to the success of its state-run health insurance exchange, Kynect, in promoting new coverage options under the health law. Kynect was launched under Bevin's Democratic predecessor, Steve Beshear, and dismantled by Bevin this year.

Bevin has threatened to roll back the expansion if the Obama administration doesn't allow him to make major changes.

Those would force Kentucky's beneficiaries to pay monthly premiums of $1 to $37.50 and require non-disabled recipients to work or do community service for free dental and vision care.

Budget pressures are set to rise next year in the 31 states and the District of Columbia where Medicaid was expanded as the federal government reduces its share of those costs. States will pick up 5 percent next year and that will rise gradually to 10 percent by 2020. Under the health law, the federal government paid the full cost of the Medicaid expansion population for 2014-2016.

[Also: Trump presidency puts Medicaid expansion in the crosshairs; Here's what that means]

In a state as cash-strapped as Kentucky, the increased expenses ahead for Medicaid will be significant in Bevin's view -- $1.2 billion from 2017 to 2021, according to the proposal he's made to the Obama administration.

Most experts expect federal officials to reject Bevin's plan before the end of the year on the grounds that it would roll back gains in expected coverage. On the other hand, Kentucky's chances might improve next year in the administration of President-elect Donald Trump, who has vowed to repeal Obamacare.

"As changes take place on the national level to deal with the failed Obamacare experiment, we will respond accordingly," said Bevin spokesman Doug Hogan.

Lockaby is watching with alarm: "I am worried to death about it."

Life already is hard in her part of Kentucky's coal country, where once-dependable mining jobs are mostly gone.

In Clay County, where Lockaby lives, 38 percent of the population lives in poverty. A fifth of the residents are disabled. Life expectancy is eight years below the national average.

[Also: AHIP to address Medicaid final rule, launch Modern Medicaid Alliance at conference]

Clay's location places it inside an area familiar to some health experts as the South's diabetes and stroke belt as well as the "Coronary Valley" encompassing the 10-state Ohio/Mississippi valley region.

About 60 percent of Clay County's 21,000 residents are on Medicaid, up from about a third before the expansion. Its uninsured rate for non-elderly adults has fallen from 29 percent to 10 percent.

That hasn't made Clay's people healthier yet. Most local health officials here believe achieving that will take a decade or more. Instead, they cite progress in smaller steps: more cancer screenings, more visits to mental health professionals and more prescriptions getting filled. Harder lifestyle changes that are still ahead -- such as eating better, quitting smoking and regular exercising -- will take more than a couple years to happen, said Aaron Yelowitz, associate professor of economics at the University of Kentucky.

One hopeful spot is the Grace Community Health Center in downtown Manchester, where patient visits are up more than 20 percent since 2014. Those without insurance pay on a sliding fee scale, which can mean a visit costs $50 or more.

That was too much for Ramiro Salazar, 47, who lives with his wife and two children on a $733 monthly income. With Medicaid, he sees a doctor for his foot and ankle pain, meets regularly with a psychologist for anxiety and gets medications -- all free to him. Medicaid even covers his transportation costs to doctors, vital because a specialist can be 40 miles away.

Salazar is worried about Bevin's plans, especially the additional costs. "I probably couldn't afford it as I'm unemployed. It would hurt me pretty bad," he said.

Any development that could take away health coverage from people with mental health issues worries Joan Nantz, a psychologist who works part time at Grace and whose appointment calendar is booked three weeks out due to patient demand. More than 90 percent of her clients are on Medicaid.

"If something happens to this program, I can't begin to think what impact it would have on society," she said. Without counseling, people with mental health issues will resort to illegal drugs and be more likely to commit crimes and domestic violence, Nantz said.

Just five primary care doctors in Manchester treat adults in Clay and surrounding counties. Manchester Memorial Hospital has tried to recruit more without success due to region's isolation and poor economy.

"We had a painful primary care shortage here five years ago and now it's worse," said Dr. Jeffrey Newswanger, an emergency room physician and chief medical officer at the hospital.  "Just because they have a Medicaid card doesn't mean they have doctors."

The emergency room is busier than ever seeing patients for primary care needs, he said.

Newswanger sees both sides to the debate over Medicaid. The hospital gained because more patients are now covered by insurance, and the ER's uninsured rate dropped to 2 percent from 10 percent in 2013.

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"Eliminating the expansion altogether would be painful for the hospital and a disaster for the community," he said.

But, Newswanger also appreciates some of Bevin's proposals.

"No one values something that they get for free," and incentives are needed to make people seek care in doctors' offices instead of expensive ERs, he said.

Christie Green, public health director of the Cumberland Valley District Health Department that covers Clay County, said making the poor pay more or scrapping the Medicaid expansion would be a setback to improving people's health.

Last year, Green helped Manchester build a three-mile trail along a park and install a swinging bridge across a small creek. Both additions were intended to promote physical fitness in a place where and more than a third smoke -- both far above national averages.

Progress is slow. The path is used regularly but drug addicts congregate daily by the bridge and it rarely gets traffic.

"There is a lot to overcome here," Green said.

Kaiser Health News (KHN) is a national health policy news service. It is an editorially independent program of the Henry J. Kaiser Family Foundation.

Twitter: @HC_Finance